A Dad has finished an epic functioning obstacle to elevate essential money and consciousness in honour of son who has a scarce, existence-limiting issue
Brett Parson, 48, from Wallingford, ran four miles, just about every 4 several hours, for 48 hrs, clocking up an extremely-distance of 48 miles and boosting a huge £1,600 very last month.
He was elevating money for nationwide charity Dravet Syndrome United kingdom as his 9-yr-old son, Bradley, has Dravet Syndrome, a uncommon, existence-limiting kind of epilepsy that influences all around a single in each 15,000 persons in the United kingdom.
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Bradley experienced his 1st seizure at five months aged, lasting for 50 minutes and as he struggled to breathe, he was blue-lighted to medical center.
Brett with users of functioning team Operate Wallingford
This became an undesirable pattern that would grow to be Bradley’s schedule nearly each and every 3 to four months for the subsequent 18 months of his lifetime. At a single yr outdated, Bradley was identified with Dravet Syndrome next a genetic test.
As effectively as suffering from critical, challenging-to-management seizures, children and grownups with Dravet Syndrome have various degrees of mental disability and a spectrum of linked problems.
Bradley now has to choose several unique drugs to aid management seizures. His intense studying issue, the latest diagnosis of ASD/ADHD and the incapability to purpose independently imply that there are a good deal of daily troubles and he will constantly be dependent on 24/7 treatment.
Mr Parson mentioned: “Completing the challenge was rather honestly one particular of the greatest experiences of my lifestyle.
Brett running with the team at the rear of him
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“I loved every minute of it mainly because it signifies so significantly to me to be in a position to elevate dollars and awareness about Dravet Syndrome and of the charity Dravet Syndrome United kingdom.
“I experienced these incredible guidance from my working club, Operate Walllingford, who ensured I had a person to maintain me company on just about every and each individual run I went on, such as the two midnight and 4am operates.
“I just cannot thank them more than enough for their guidance, plus all the messages, likes, words and phrases of encouragement from my pals and household all over the 48 hrs just fuelled me and retained me likely to the end.
Brett Parson with his son Bradley
“I’m massively grateful to absolutely everyone that sponsored me, enabling me to exceed my fundraising goal and supply precious funds for Dravet Syndrome Uk.”
In advance of the problem Brett said: “Despite his issue, Bradley definitely is the most exceptional, loving, sort and considerate son. He lives his lifetime to the entire.”
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Director of the charity, Sarah Pearce, claimed: “We are so grateful to Brett for putting himself by means of this gruelling problem in aid of Dravet Syndrome United kingdom.
“The funds Brett raises will help the charity to assistance far more families like his, who are residing with Dravet Syndrome”.
To make a donation, take a look at: www.justgiving.com/fundraising/brett-parsons3
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This story was prepared by Gee Harland, she joined the group in 2022 as a senior multimedia reporter.
Gee addresses Wallingford and Didcot.
Get in contact with her by emailing: Gee.harland@newsquest.co.united kingdom
Adhere to her on Twitter @Geeharland
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